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Brake Dancing

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By ajbray · December 18, 2009
2 Comments · 501 Views

Part of the art of blogging involves revealing yourself to the masses through an anonymous medium.  Well, since I'm a relatively open, real person, it isn't such an incognito undertaking.  But we're all friends on OnSugar, so here goes...

I used to be a dancer.

Actually, I still am, but not like I was when I was younger.  I was born into a family of competitive, avid ballroom and swing dancers, and did them all proud in my tiny, formative years.  I was learning ballroom, latin, and swing dancing before most kids could walk, and could execute a decent cha-cha and jitterbug by grade one.  I loved dancing, and my parents, grandmother, and/or aunt took me everywhere they could.  I seemed on a fast-track to becoming a future member of the dancesport community.

That is, until my legs failed me the first time at age nine.

I was shuttled from specialist to specialist, only to find that I already had "advanced arthritis" in my lower limbs and a major bone deformity.  No one knew how to correct it, everyone was afraid to touch me at such a young age, and no one had a very optimistic prognosis.

I'll spare you the gory details, but umpteen surgeries and a world of hell later, nothing improved... except my outlook on life, that is.

When I was fourteen, the first full year I spent non-ambulatory, my parents took me to a swanky New Year's event that included dancing into the wee hours.  I spent the first chunk of time being surly, missish, and not really trying to do anything other than feel sorry for myself.  Suddenly, the DJ slid from a generic dance tune to one my mom and I had danced to a zillion times when I was a baby.  It was, "Heaven Must Be Missing an Angel" by Tavares, and as it relates to my given name, she would sing it to me while hugging me close to her, even before I could walk.  That song still makes me happy.

"Angel, c'mon, let's do this.  We'll kick their asses!" my Mom smirked, then grabbed my hand and pulled me bodily out onto the dance floor.

And we danced.

I don't know how she knew, or how I knew, but somehow we both just moved in synch, wheelchair and all, and cleared the floor amidst a standing ovation from onlookers.  We rocked it, and I have never once looked back.  I found out later that she had requested that song specifically, knowing I'd never deny my Momma a turn about to a song from my babyhood.

Now that I'm a grown woman, my husband is the one who usually takes me out on literal 'spins' around the dance floor, and his own dance background shows.  When he was a child, he took dance for fourteen years, including jazz, tap, ballet, and modern, but I've since helped him add disco, swing, ballroom, Latin, and goth dancing to his impressive repertoire.  And between the two of us, we can execute a perfect wheelie tango that would sex the pants off any standing couple.

And, most importantly, we're not alone.

Across the Pond, the Brits have done it again by way of progress and mainstreaming PWDs, but, this time, the Yanks aren't too far behind.

The American DanceWheels Foundation recently released an informative email to their members that featured their most recent accomplishments:

"Ballroom and Latin Dancers using wheelchairs will be featured in a new television series, Dancing on Wheels, debuting next year in the United Kingdom. News about this innovative and controversial dance show created a buzz in the U.S. and producers from America's Got Talent asked American DanceWheels Foundation to audition for their show."

American DanceWheels is a fantastic organization, and one of the many wheelie dancing orgs here on our fair planet, along with Wheelchair Dancesport USA, Wheel Chair Dance Sport Australia, Malta Wheelchair Dancesport Association, and B.C.'s Canadian Wheelchair Dance Academy.

The release goes on to include more local news...

"ADF highlights this past year included a three-page article in the Philadelphia Inquirer about our own Reesa Marchetti and husband Dan.  Reesa has had her own band for over thirty years and uses a power wheelchair to dance. She and Dan dance a mean Fox Trot and always bring the house down when they perform. You can read Reesa's story on our website, and yes, Reesa is as colorful on the dance floor as she is in life!!"

Their site is a great resource for those of us who still love to cut a rug on wheels, along with many other similar sites on the Web.  For people like me who remember when the notion of dancing without legs was as bizarre as disabled models, we're in luck.  Maybe we're catching up with the world; maybe the world is catching up with us, but either way...

We're taking the world by storm.


 

(Photos from my personal collection and New Mobility Magazine.)

'Missing' Models?! We're Right Here!

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By ajbray · December 1, 2009
0 Comments · 769 Views

This is a momentous occasion in my house.

Tonight, for the first time in my life, I'm going to schedule my night (or at least my DVR) around a reality show.

Some people may know that I'm not terribly fond of eliminate-y reality shows.  I don't care for the banal dialogue, pointless standing around, and overused pregnant pauses for dramatic license.  I also find it excessively irritating that to really appreciate the show, one must follow it religiously, much like a soap opera, but without as many any marriages to amnesiac evil twins who, in the search for their estranged fathers, discover they had four children whilst in a cult, underwent a sex change, and have been brought back from the dead...twice.  And, now that I think about it, even that sounds way more interesting than who can swallow a bug fastest or stand Flavor Flav the longest.

But, tonight will change all that.  The Brits have finally decided to export the coolest, most fabulous thing since Topshop... Britain's Missing Top Model.

The concept is basically the same as [Insert Country Here]'s Next Top Model, except these ladies are gorgeous, glamourous, and all disabled.

 

After doing some digging on the actual BBC site for the show, there should be a badass animated interloper to spice up the action named Disability Bitch.  I'm hoping she doesn't get edited out for the export, but if not, we can expect some seriously sassy gems like these throughout the show (from the UK site):

"Hi, I'm Disability Bitch. I'm disabled and I love it. Everyone should be disabled. Everyone should be like me."

"Mostly I use a crutch, but when I want to slip into a pair of high heels - which makes it almost impossible for someone with my lack of balance to even think about walking - I have a wheelchair to match. Of course, I'd prefer to be carried around on a sedan chair. Preferably by semi-naked men. But even I can't have everything, more's the pity."

"I love gossip, especially gossip about disabled people. Barely a day goes by when I don't find myself scanning the tabloids for news of Heather Mills."

"I eat doughnuts and I hate exercise. Quite frankly, I don't see why disabled people should have to do exercise in the first place."

DB will also be interviewing the models as they get the boot, one by one, so I'm hoping for some juicy, catty tidbits, but with as classy as these girls look, I may or may not get my wish.

The only thing I am a little confused about is the 'Missing' part.  I mean, I'm a disabled model, and I'm not missing.  I'm sitting right here on my tushy, typing out a blog.  I know a lot of other gorgeous disabled models, and they're not missing either -- they know exactly where they are and where they're going.  Professionally, I haven't really faced all that many issues, except maybe trying to explain to photographers that "just a few stairs" is NOT equivalent to wheelchair accessible, and no, I can't always move that way.  We already have a great network within the community, from runway shows to photography exhibits, but I can see that we are 'missing' from mainstream media.  Still, we're out there, and it's good to see we're finally being taken seriously by AB people.  And this..well, this is bloody brilliant, if you ask me.

The other bummer is that the BBC.co.uk page on the show is still up, and since this show was aired last season, I already know who wins.  Unless you want the ending to be spoilt, I don't recommend going directly there.  Instead, head to the BBC America page for the episode guide, intros to the models, and a little more about the show.  If you don't mind knowing who wins before the show even premiers, the UK page has tons more information.  There, you'll find quotes, downloads, message boards, extensive photo galleries for each model, and background info on the judges.  Even though I already know which of the stunning women makes it to her very own photo spread, I'll still be watching every episode as it airs.

So, if you're trying to get a hold of me tonight at 9 PM, it'll be for naught.  I'll be watching eight beautiful women as they attempt to break into the modelling industry and shatter stereotypes along the way.

 

(Hey, Canada, the US... where's our Missing Top Model show?!)

 

 

I'll just be a minute...

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By ajbray · December 30, 2009
2 Comments · 622 Views

Don't worry... this rant will just be a minute...

Today was one of those days that just slaps you in the face with the wet, squishy, stinging ignorance of people -- and it left a mark.

As a person with a disability, I spend a LOT of my time being dissed by able-bodied folk on my own turf. Morons who park illegally in the handicapped stalls, even bigger morons who park illegally in the loading zones attached to said handicapped parking stalls, and the vapid, selfish women who feel the wheelchair-accessible cubicle is the ONLY place in the washroom where they can do #2.

Oh, I'm going there. The gloves are off...

Because, today, after I wasn't able to pick up my wine order after thirty full minutes of ignoramuses thwarting me, I had plenty of time to total up how much of my life I have lost (and will lose) because people will "just be a minute."

Example #1: We're driving around a less-than-half-full parking lot and cannot find a place to park.

You see, those "good parking spots" with the biiig, wiiiiide open, yellow or blue diagonally-striped "parking spots" adjacent were not put there for you to sit while waiting for your father/personal chef/husband/child/wife/friend/juggler/TV anchorman. Those striped "spots" are wheelchair loading zones, and without access to them, I CAN'T GET OUT OF MY CAR. In many countries (including this one), the widely recognized symbol for a "No Parking Zone" is diagonal striping.

Now, I'm a fit, healthy(ish) young woman, and don't mind a quick jaunt from the back of the parking lot on a good day (or a push on a bad one), but I do take umbrage when someone parks next to me and completely bars me from getting into or out of my own vehicle, hence the creation of Loading Zones. That same nifty law also created parking spots that bear a glyph that looks a lot like me and my brethren. Check out the family resemblance:

Pretty cool, eh?  I think my hair is a little nicer, but we have the same arms, though my head isn't quite as round.  And blue just washes me out completely.

Anyway, I have chased so many people out of our spots who tried to validate their bad behaviour by explaining, "Well, I'm just going to be a minute."

Not.  Good.  Enough.

You see, by doing this, you are breaking the law.  You are also inconveniencing and hurting me, sucking away valuable minutes of my life.  So, in return, would you find it acceptable if I punched you in the face for "a minute"?  (BTW, "a minute" is an indeterminate measure of time between five and forty-five actual minutes.)  That would be breaking the law, ruining your day, and completely inconveniencing you.  It would also suck majorly, wouldn't it?  But, I don't do that, because I'm not a law-breaking, mean-spirited, ignorant suckhole of a humanoid.

So, to you, Dude in The Parking Lot Who Parked Illegally In The Handicapped Stall Today: Face Punch.  I don't find it chivalrous that you took away my lawful civil rights while you waited for your wife, and no, I don't find being a douchebag a disability.  So, next time, find someplace else to idle your fume-spewing minivan.  Although, I did find it funny when I told you that if you wanted to wait for her, why didn't you park even closer to the front, in the Fire Lane, where you wouldn't inconvenience anyone?  (Unless the building caught fire, but then you'd have bigger problems, I suppose.)  And, with flawless comic timing, you responded by looking at me blankly and saying, "But, I can't park there...that's illegal."

You, sir, are an idiot.

And you also made us late for dinner, which leads me to...

Example #2: I drank a glass of water and a whole pot of tea to myself at the restaurant.  Before we left to go pick up the wine, I excused myself to the ladies'.  The restaurant was mostly empty, and very few were female diners, so I wasn't surprised to find the washroom completely deserted...except for one cubicle.  Mine.

I say mine, but had another girl with a disability been present, it would've been hers.  It's OURS.  It was made for us, so we can get our wheelchairs (walkers, crutches, etc.) in, shut the door behind us, make use of the rails and taller toilets, and do our business like "normal people" get to do.  It was even made so that people with difficulties getting up and down can make use of the same amenities.  Without us, and our struggles, it wouldn't exist.  Period.  It was NOT made so that you can go into "the big stall" and feel special while going #2.  Sorry.  If you want a special Poopie Room, call your MP, Congressman, or Senator and complain.

Because, sister, I really don't want to sit there for TWENTY FREAKIN' MINUTES listening to your...well... ugh... sounds!

Naturally, she was perfectly able-bodied, and said as much to me, but just wanted, "privacy."

THEN DON'T GO OUT IN PUBLIC!

Or, better yet, go rent a whoooooole hotel room, just so you can make a doody.

Incidentally, it's also not your personal changing room, the stall for you to go chat with your BFF and swap wrap dresses, nor the place to do your icky drugs.

In conclusion, because of her bowel issues and total lack of human civility, I missed getting to the wine place to pick up my order.  I'm not pleased.  Maybe next time I just shouldn't eat.  Or wear a diaper under my Wolford tights.

I could go on with my frustrated PSA, but I promised a mathematical summary of how many days and weeks of my life I will never get back thanks to these individuals.  Assuming Pi * r (squared) and A(squared) + B(squared) = C(squared), and I lose (on average) thirty minutes each time I leave the house, and I do so at least five times a week, then the magic number is....[drumroll]...

5.42 days per year

So, given that I've been in a wheelchair since 1994, I've already lost about 53 days off my life.  Now, let's be optimistic and say that I'm going to live to a ripe-old age of 80 (though, what with the added stress of these morons, is highly unlikely)... that means another 271 days gone, for no darned good reason.

All total, we're talking about 324 days -- almost one full year -- of my life squandered by able-bodied people in space rightfully created for the disabled community through hard work, legislation, marches, protests, and lawsuits.  And that's a conservative calculation.  Essentially, I'm going to lose at least a year off my life because of Pooping Lady and Parking Lot Douche.

Thanks to both of them for "just being a minute."

Call For Submissions: TouchAble (erotica for and by PWD)

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By ajbray · December 24, 2009
0 Comments · 1,516 Views

Call for Submissions

Call: Straight, GLBT, Vanilla, and Kinky stories of Disabled Sensuality
Edited by: A.J. Bray
Title: TouchAble
Format: E-book, possibly print
Publisher: Phaze
Projected release date: mid-June 2010

Passion knows no boundaries. Nothing, not even disability, can bar the way to a hot, sexual interlude if the moment is right – and that’s what I’m aiming to showcase in the upcoming anthology, TouchAble.

I’m seeking literate, well-written stories of an erotic nature with a central character that has a disability. Wanted are pieces that empower and demonstrate the sensual abilities of those who are mobility, visually, speech, or hearing impaired. Not desired are stories that fetishize or marginalize individuals in the disabled community or that contain the standard taboos (incest, bestiality, non-consensual sex, snuff, bloodplay, underage sex (even in flashbacks), or anything involving toilet functions).

Special preference will be given to tales crafted by writers with a disability from their own perspective. This is your chance to tell the world what you love, how you love, and who you love.

Deadline: 1 February 2010

Editor receives one-time electronic and print rights to works, and contributor receives a one-time payment of $50 after publication for selected stories, plus one contributor’s copy per format (e-book initially, and paperback if chosen for print publication)

To submit stories with fewer than 12,000 words, send them in RTF format to touchablebook@gmail.com.

 

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